My Birthday. Yea!!

It is my 16th birthday today finally.

Hermansky-Pudlak Syndrome

Hermansky-Pudlak Syndrome (HPS), is a genetic disorder that I have. I have type 4. There are 7 known types. Some of the outward signs that I have are: Albinism, I bruise easily, I have low vision and prolonged bleeding. Thankfully that is all that I have right now. Some of the symtoms that I may or may not get are colitis, pulmanary fribrosis, and a waxy like substance that could build up in my organs.
I really don't care if I do get any of these things. It would suck, but God has His plans and purposes. I wouldn't trade anything to be "normal." But having HPS4 makes me even more rare!

My Poem

He loves me majorly,

He looks at us uniformly.

My love cries out for Him

As I try to find a way

To get rid of my sin.

forever and ever.

He forgave me like we forgive our mom,

'Cause we all know how they're never wrong.

He said let there be light,

And died on the cross.

He was a baby in a manger,

A carpenter at home,

A preacher to all,

A savior at last.

There was a crack and a boom,

And then He was in heaven.

He walks with me eternally.

His temple is inside me.

I bow to the floor:

I raise my forgiven hands,

To worship the King of Glory,

The Son of God, the Son of Man.

But still I ask why

Why did He save me.

And then I know,

It's for the life that He gave me!